A euthanasia advocate says the loss of life of a 23-year-old woman with a painful terminal illness demonstrates the benefits of the latest legal guidelines for voluntary dying, but says further steps need to be completed.
Brave Lily Tai has ‘passed away peacefully’ after years of battling Autoimmune Autonomic Ganglionopathy (AAG), a rare condition where an individual’s body structure attacks their own nervous system, leaving her unable to walk, drink or eat. to be sick
The South Australian used legal guidelines introduced in January this 12 months and on June 21 to end his life surrounded by family members at Laurel Hospice Flinders Medical Centre.
dr. Philip Nitschke – nicknamed Dr Death for his work in the controversial medical discipline – hopes Lily’s case will “reduce people’s fears about assisted dying” and “strengthen support for the law”.
South Australian Lily Tai, 23, who suffered from a terminal illness, died after deciding to use legal guidelines for assisted dying to end her life (pictured)
Doctor Philip Nitschke, nicknamed “Doctor Death” for his work in the controversial medical discipline, hopes Lily’s case will “remove people’s fears about assisted dying” and “strengthen support for the law”.
“The laws in SA work, as Lily shows, and I think most people will be happy that legislation like this exists to help them,” he said. Advertiser.
“I noted that out of about 12 people who have used the legislation, they had terminal cancer or a degenerative neurological disease, and in all those cases it’s hard to find someone who wouldn’t accept the SA bill.”
The former Adelaide doctor, who now lives in the Netherlands, believes the legal guidelines have not changed the need for older people to end their lives through national laws.
dr. Nitschke mentioned that the elderly want to be responsible for their own death without having to seek approval from welfare authorities, as required by state legal guidelines.
“I don’t see the general feeling among older people diminishing that they have to make a decision and that it shouldn’t be controlled by a restrictive legislative process,” Dr. Nitschke said.
“Many older people will continue to find and sometimes use their own lethal drugs or plan a final trip to Switzerland, the only place in the world where access to help is not controlled by doctors.”
South Australia has launched Voluntary Assisted Dying, requiring an individual to make three requests and be assessed with two documents earlier than they can start.
Since the age of 17, Lily’s debilitating illness had affected her high quality of life, leaving her bedridden and unable to maneuver.
Lily spent her final days surrounded by family and friends in a hospice earlier than dying after doctors administered a fast-acting IV treatment.
In an Adelaide Advertiser obituary, her household introduced that Lily had “died peacefully”.
“Dear daughter of Kate and Le,” the message read.
“Beloved granddaughter, niece and nephew.
A dear friend to many.
“You may be out of our sight, but you are never out of our hearts.”
Lily was the daughter of high-flying culinary couple Le Tu Thai and Kate Sparrow.
Mr Thai is a Vietnamese refugee who has become one of Adelaide’s most respected chefs.
He and his partner Kate rose to prominence with their Nediz Tu restaurant before Mr Tai later took over the kitchen at the city’s well-known Bridgewater Mill restaurant.
In an obituary, her household introduced that the South Australian’s youngest half had passed away “peacefully” at Flinders Medical Center Laurel Hospice last Wednesday, June 21.
Paramedic Danika Pederzolli recently took Lily to the seaside with a heartwarming picture of the pair sitting in the back of an open ambulance enjoying an ocean view and some McDonald’s fries.
Their daughter was in “excruciating” pain from an unusual autoimmune autonomic ganglionopathy (AAG).
Since the age of 17, Lily’s debilitating illnesses had affected her high quality of life, leaving her bedridden and unable to maneuver.
She received palliative care at Laurel Hospice in the weeks before she lost her life.
Lily was not well enough to go out in the last few days, and as an alternative, she would have kept her mattress, but was comforted by her family and friends.
One of those in Lily’s sights was her good friend and paramedic Danika Pederzolli, 28.
Not long ago, Ms. Pederzolli took Lily to the seaside with a heartwarming picture of the couple enjoying themselves in the back of an open ambulance with an ocean view and some McDonald’s fries.
Ms. Pederzolli, who met Lily through the St. John Ambulance Cadet Program, said she will remember her good friend as an “energetic, positive and warm presence.”
“She is such a positive and warm presence in your life and (such) a smart person,” she advised the publication.
“She was so happy and she still is now, she’s no different.”
She described Lily as “sunshine in human form” and wrote her an affectionate note, which she presented with a teddy bear.
In addition, Lily befriended another AAG sufferer, Annaliese Holland, 23.
Lily (real) also shared a friendship with fellow AAG sufferer Annalize Hollan (real) with the pair sharing stories about the disease in hopes of spreading awareness.
Wanting to raise awareness of the unusual disease, the couple shared their stories in the hope that it might lead to earlier analysis of signs in various AAG sufferers.
Lily mentioned that her knowledge of AAG has been incredible as several individuals have reached out to offer their help.
“A lot of people (who) I haven’t talked to in a long time (reached out), which was really nice,” she mentioned.
The drug used to end Lily’s life under new legal guidelines for assisted dying in South Australia was administered through an IV, leaving the 23-year-old woman lifeless in 10 seconds.
What is autoimmune autonomic ganglionopathy?
Autoimmune autonomic ganglionopathy (AAG) is an autoimmune disease in which your immune system mistakenly attacks your autonomic nervous system.
The autonomic nervous system is part of your peripheral nervous system. It controls certain forced body processes similar to your breathing, blood load or coronary heart price.
AAG is a type of autonomic neuropathy or dysautonomia. Autonomic neuropathies and dysautonomias are problems with your autonomic nervous system.
Source: Cleveland Clinic